Ireland ALDE

Marian Harkin

Country: Ireland
Group: Alliance of Liberals and Democrats for Europe (ALDE)
Party: ()

Member of Employment and Social Affairs
Substitute of Agriculture and Rural Development
Substitute of Petitions

Overview Marian Harkin

Amendments: 4
...stronger: 2
...weaker: 2
...neutral: 0

Amendments by Marian Harkin

(29) Children deserve specific protection of their personal data, as they may be less aware of risks, consequences, safeguards and their rights in relation to the processing of personal data. Such protection is particularly important in the context of social networks, where children should be aware of the identities of those with whom they are communicating. To determine when an individual is a child, this Regulation should take over the definition laid down by the UN Convention on the Rights of the Child.
 
1a. Where an information society service makes social networking facilities available to children it shall take explicit measures to protect their welfare, including by ensuring, in so far as possible, that they are aware of the identities of those with whom they are communicating.
 
2. Processing of personal data concerning health which is necessary for historical, statistical or scientific research purposes, such as patient registries set up for improving diagnoses and differentiating between similar types of diseases and preparing studies for therapies, is shall be permitted only with the consent of the data subject, and shall be subject to the conditions and safeguards referred to in Article 83.
 
(ba) Member States law may provide for exceptions to the requirement of consent for research, as referred to in paragraph 1a, with regard to research that serves an exceptionally high public interests, if that research cannot possibly be carried out otherwise. The data in question shall be anonymised, or if that is not possible for the research purposes, pseudonymised under the highest technical standards, and all necessary measures shall be taken to prevent re-identification of the data subjects. Such processing shall be subject to prior authorisation of the competent supervisory authority, in accordance with Article 34(1).